Observed arrival · 2026-09-27

A Spanish association for desmoplakin research

asociaciondesmoplaquina.org Visit website

Editorial interest 74/100 Selection signal · not a rating of the site

A family-led Spanish association shares information about desmoplakin cardiomyopathy, tracks research, and invites support for work on the rare heart condition.

Landing page captured for the 2026-09-27 issue.

For: Families affected by desmoplakin cardiomyopathy
Worth noticing: Its research roundup names CNIC, the University of Michigan, and CIRM, and includes a CRISPRa approach and a gene-therapy candidate.

Field notes

The research section points readers to work attributed to CNIC, the University of Michigan, and CIRM, including a CRISPRa study in human iPSC-derived cardiomyocytes and a named gene-therapy candidate. Contribution routes listed on the page include Bizum, bank transfer or direct debit, membership, and legacy giving. The collaborators area currently uses generic “Empresa A” through “Empresa E” labels.

Observed signals

Read the marks

Editorial observations of this landing page, not a rating.

○OpenPublic substance visible

◉HumanPersonal, local, civic, or handmade

ƒJavaScriptBrowser-side code central

One card from the complete issue

Nostalgia for an Imaginary Console

276,168 arrived 1,000 judged 980 catalogued Enter the complete issue