Observed arrival · 2026-10-15
A family biobank tracking CJD before symptoms
CJDbio describes a research biobank that follows people with CJD, healthy genetic-risk carriers and their relatives over time, collecting samples and data for research.
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$Paid
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✦Pretty
●Pro
◎Niche
◉Human
⚑Risk
ƒJS
- For
- CJD families and researchers studying the disease
- Worth noticing
- The site reports 355 samples collected, against a stated target of 500 participants; those figures are not the same as completed enrollment.
Field notes
The homepage reports 700+ families in direct contact, 355 samples collected, and a 500-participant target; the target is not a completed enrollment count. Listed materials include blood, urine, saliva and cheek swabs, alongside lifestyle questionnaires. Sample requests are reviewed by an independent committee of senior scientists, and the site says medical data are coded separately from names and researchers share results back.
Observed signals
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Editorial observations of this landing page, not a rating.
○OpenPublic substance visible
✦PrettyNotable craft visible
●ProPolished or operationally mature
◎NicheUnusually specific use
◉HumanPersonal, local, civic, or handmade
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