Observed arrival · 2026-11-07
Cystinuria Coach: a patient-written archive with a “then vs. now”
Lynne White’s site combines personal writing about cystinuria, plain-language posts, reflections on older entries, and books by the author.
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- People living with cystinuria and their families
- Worth noticing
- Archived posts retain original dates and wording, paired with 20-years-later notes on what changed and what did not.
Field notes
The site includes newer plain-language posts on nephron function, cystinuria genetics, and hydration, alongside Lynne White’s listed books: The Cystinuria Diet, Cystinuria and Cystine Kidney Stones, Breaking Free, and The Diagnosis Binder. White explicitly identifies herself as a patient, not a doctor, and advises readers not to change medication, fluids, or diet without consulting their care team.
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